Epilepsy in the Philippines

Living Well recently had visitors from the Philippines. As a way to welcome these folks, we’d like to take a minute to shine a spotlight on the Philippine League Against Epilepsy (PLAE).

PLAE is recognized as the Philippines national chapter of the International League Against Epilepsy, with regional representation throughout the country. The PLAE is a national non-profit organization of health professionals committed to the improvement of the quality of life of persons with epilepsy in the Philippines. They impart their mission through education, research, prevention, advocacy and the delivery of optimal care.

A History of Making a Difference
Since 1997 the PLAE has been acknowledged as the expert source of information and continuing professional education in the care of persons with epilepsy. The organization also maintains a national epilepsy registry and a fund for research and other activities.

For more information
To learn more about PLAE visit their website. There you will find information on their activities and photos from recent events.

Best of 2010

This has been a big year for Living Well With Epilepsy. We’ve had more than 3,000 visits from people all over the world, including locations as far reaching as Indonesia, New Zealand, Chile, and Tunisia.

Your continued support and your feedback (both in the comments section and via email) have helped to make an impact not just on this site but also on people around the world. So as the year comes to a close, we thought it would be fun to look back at a few of the highlights. 
  
45,000 sudden unexplained deaths in epilepsy
Excerpt: Epilepsy is not that serious, right? I mean, its not like you can die from it or anything. Right? But after having epilepsy for years, I just didn’t believe that the odds were in our favor, so I did a little digging.  Read More

Holiday recipes for ketogenic kids

Excerpt: The holidays can be a tough time to watch what you eat, but having to follow a plan as rigorous as the Ketogenic Diet can be practically impossible this time of year. Here are a few festive items that you can keep around the house or even bring to a party: Read More
 
Is your school Thinking About Epilepsy?
Excerpt: The Epilepsy Foundation of New Jersey (EFNJ) has educated over 20,000 fifth grade students on the topic of epilepsy using a program called Thinking About Epilepsy. Read More

Joey’s Song: Musicians in support of epilepsy awareness
Excerpt: Music was the centerpiece of Joey’s world, so the Foundation will be releasing a series of CDs that will be called “Joey’s Song”. The CDs will feature rare and unreleased songs from major recording acts from around the world. Read More

Epilepsy? Yep, there’s an app for that.
Excerpt: There are apps to find the best restaurant or to find you when you’re lost, but an app for epilepsy? Now that just blows my mind. In a two second Google search, I found links to information on at least three apps relating to epilepsy. Read More

Your opinion
Let us know what you think of these top stories. And if there are exciting things that happened in your neck of the world, include that in your comments below.

Coming Next
Oh and start thinking about your plans for next year. Soon we’ll post a piece on New Year’s resolutions and we’d love to include yours. So if you would like your resolution included send it to livingwellwithepilepsy@gmail.com with “resolution” in the subject line.

$20,000 wish comes true for teen with epilepsy

Recently in West Nyack, NY a wish came true for Matthew Von Dollen. This 18 year old, who has epilepsy, was given the gift of independence.

Because his seizures are resistant to treatment, Matthew’s family is afraid to leave him alone. Now thanks to Canine Assistants, he will be able to enjoy more freedom, and so will his family.

ShopRite and the company that makes Milk-Bone dog snacks are sponsoring the cost of Matthew’s service dog as well as the two-week training that the teen will have to go through.

Although he’ll have to wait a year for his dog, when it finally arrives, Matthew and his family won’t have to pay the $20,000 cost to train his new partner.

More from lohud.com

Epilepsy gifts that make an impact

During this season of holiday parties and gift giving, I thought it would be fun to see what’s available in epilepsy gifts. I was surprised to find that there are many options for contributing to the cause and increasing awareness by way of a holiday gift.

Since everyone loves to open a gift, I thought it made sense to start with the things that can be wrapped. There are several sites that offer epilepsy awareness shirts, caps and other merchandise. Two of my favorites are Zazzle and Cafe Press. To the right you’ll see a shirt that can be found on these sites.

If you are looking for a gift that makes more of a direct impact, you’ll find that many organizations welcome donations as gifts. In fact, the Epilepsy Foundation has set up a way to send a card to let your friend or family member know a gift has been made in their name.

And, if you want to contribute to your local epilepsy organization but don’t know where to find them, start by following me on Twitter. Check out the organizations I’m following and you will find many of the epilepsy organizations throughout the world.

Know of other great gift ideas? Just leave a comment below.

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