Participate in an epilepsy study

Ever considered participating in a study to benefit research on epilepsy? If you are a woman with epilepsy between the ages of 24 and 44 then Amanda Dennis, a researcher at Ibis Reproductive Health, wants to talk to you. Amanda and the folks at Ibis are looking for women to take part in an in-depth telephone interview to discuss their experiences with epilepsy and with making decisions about contraception, and pregnancy.
Join me on the New Digg
However, before I was ready to post info on a study on this epilepsy blog, I needed to do a little Q&A of my own.  I thought if I was going to encourage you to do a telephone interview, then Amanda should answer a few questions too. To read what she had to say, check out my interview below:

Interview with researcher Amanda Dennis 
What prompted you to do the study?
As a woman with epilepsy, I have been interested in this topic for a long time. I was diagnosed with epilepsy at age 11. Currently 31 years old, I have talked to a number of different health care providers along the way about my own contraception and pregnancy decisions, and have often received conflicting or incomplete advice from different doctors.

I am now a full time researcher at Ibis Reproductive Health and am completing my doctorate in public health at Boston University. My dissertation seemed like a perfect opportunity to talk with other women with epilepsy about their experiences making decisions about contraception and pregnancy, as well as their experiences talking to various doctors about these decisions. There is little understanding of how women with epilepsy make these decisions. As these are some of the most important decisions women can make in their lives, I believe this topic is an important one and one in need of research.

What do you hope to gain from the study?
I hope this study makes at least a small contribution to improving reproductive health care and neurological care for women with epilepsy. It is critical that the voices and perspectives of women with epilepsy are documented so that health care providers can better understand the contraceptive and reproductive health needs of women with epilepsy, and tailor their clinical advice appropriately.

How long will the study go on?
I anticipate the study will last another six to eight months.

How many participants have you interviewed? do you hope to interview?
I have interviewed six women so far and hope to interview anywhere between thirty and fifty in total.

Do you have anything you would like to say to women considering participating in the study?
I want to thank women for considering participating in the study and encourage them to contact me if they have any questions about the study. I have learned so much from the few interviews I have completed so far, and I look forward to learning more in future interviews.


Details on the study

Participate in a telephone research study for women with epilepsy!
We are looking for women to take part in an in-depth telephone interview to discuss their experiences with epilepsy and with making decisions about contraception, and pregnancy.
Your participation in the study would involve one telephone interview that will last 30 to 60 minutes and can be conducted at a time that is most convenient for you.
You are eligible to participate if you:
·         are female
·         have epilepsy
·         between 24-44 years old
·         speak fluent English
·         live in the US
 
Call or email to see if you are eligible!
You will be reimbursed with a $50 Amazon gift card for your time.
For additional information regarding this study or to enroll, please respond to this posting or contact us study@ibisreproductivehealth.org or at 877-532-1472
Let us know by commenting below if you would like to see more information like this.

Living Well has welcomed our 3000th visitor

A recent look at Living Well’s google analytics showed that https://www.livingwellwithepilepsy.com/, an epilepsy blog, has welcomed over 3000 unique visitors! We have an average of 25 people swing by each day. That’s a dramatic improvement from this time last year when we had an average of 2 people visiting the site each day. And at least one of those people was me.

Exponential Growth
Just in case you’re no math whiz (I know I’m not), that’s a 1150% increase in average daily visits! Thanks everyone, we really are making an impact.

No Mean Feat

Living Well is not going to take down The Huffington Post or Mashable, but I’m thrilled with our success and to be part of a community that is raising epilepsy awareness with each post.

Where in the world  
To give a sense of scope, those more than 3000 people made 4,240 visits and they came from 96 countries/territories including:
United States, Canada, United Kingdom, Australia, India, Philippines, Czech Republic, Germany, Indonesia, and Croatia among others.
Thanks
So thanks again, and keep those suggestions coming. They can only make our community more connected.

Feedback on new look sent us back to the old look

You gave feedback … and Living Well listened.

The “new” header that went away

I recently uploaded a new header, logo and color scheme for the Living Well site. You as readers spoke up and said “NO”.

So we are back to the old look (at least for a while). Until we find a new one that gets good feedback.

Keep those comments coming. We hear you!

Exciting new developments at Living Well

There have been a few exciting new developments at Living Well With Epilepsy that we wanted to share with you. Recently we were nominated for a shorty award, welcomed our 3000th visitor and got a new look.

Shorty Update
When voting closed for the Shorty Awards, epilepsy held a respectable 5th place out of more than 180 nominees in the Health category. This competition helped raise awareness for epilepsy and gave us the opportunity to connect with some pretty amazing folks. 

3000 visitors to Living Well
Living Well just hit another milestone. This week our site welcomed our 3000th unique visitor according to our latest Google Analytics stats. Thank you to the 3000 of you who visited and we appreciate the more than 8000 times you’ve come by to check out the latest updates on Living Well With Epilepsy.

Check out our new look
We are in the process of rolling out a new look. That includes a logo for Living Well. We’d love to hear your feedback on the change. Like it? Don’t like it? Let us know by commenting below.

1 162 163 164 165 166 167 168 179