I started taking phenobarital first. Like many other people, I tried many medications through the years, none of which controlled the seizures for any length of time. Some actually made me have more seizures.
My life from childhood through the teen years, and even my time as a young adult, was very challenging. Trying to maintain some form of normalcy while having seizures, taking the medications, and recovering from them made life unbearable at times.
In 1991 I had a left temporal lobe brain surgery, and I was seizure free for approximately 10 years, but then the seizures came back. I went back on medicine, but nothing ever controlled them completely. I missed a lot of time from school and work, because the recovery from the seizures was actually worse than the seizure itself. It was very difficult trying to explain to family and friends, and later on to bosses and coworkers, about my epilepsy. I felt misunderstood since the type of seizure I was having there were no visual effects that anybody could actually see. I mostly had them in my sleep.
The years passed by and I coped the best I could. Then in 2012 a new doctor came to town. I entered the hospital and went through the routine gambit of tests. Turns out that I was a perfect patient for a Vagus Nerve Stimulation or VNS Therapy implant. So, in December of 2012 I had the VNS surgery done, and I have been seizure free for over 4 years now!!!
According to the Mayo Clinic, about one-third of people with epilepsy don’t fully respond to anti-seizure drugs. Vagus nerve stimulation or VNS Therapy may be an option to reduce the frequency of seizures in people who haven’t achieved control with medications. Vagus nerve stimulation may also be helpful for people who haven’t responded to intensive depression treatments, such as antidepressant medications, psychological counseling (psychotherapy) and electroconvulsive therapy (ECT). To learn more visit: https://vnstherapy.com/learn-more/how-it-works
There are several more chapters in my journey, but I only had time and space for the short version. Thank you for taking the time to read my story! I’m living proof that you should never give up or lose hope! God Bless!!