My name is Gideon Ronald Akanyijuka, CEO of Epilepsy Awareness Uganda (EAU). EAU is a Non Governmental Organization that brings together all persons aﬀected by epilepsy in Uganda.
This year has been so much difficult for everyone, but for people living with Epilepsy, it has been so much more difficult.
Epilepsy and Covid19
Considering that there was a lockdown in Uganda, a total lockdown for three months, getting medication was so difficult. And this made the conditions of most people living with Epilepsy worsens.
Having less or no meals even when they have to take medication made it worse. We received so many calls from our Epilepsy Awareness Uganda family who needed help but we could only reach out to few, due to fewer funds available.
Supporting our members
Though the year has been difficult we have had some good times as well. We received donations of wheelchair to one member, Fred, who really needed a wheelchair for easy movement. We have also received masks and sanitizers to distribute to our epilepsy family.
We also had a member who was afraid to open up to his wife about his epilepsy, but after talking to him he was able to tell the wife the truth. Epilepsy Awareness Uganda was able to provide the family with food and the member was concerned about telling his wife about the organization. We are excited that member family now has open communication about epilepsy in their home.
Lockdown in Uganda
Lockdown has since eased up and as the country is getting used to the new normal, nothing big has changed to our epilepsy community. Finding medication is still difficult, and many more needs.
The encouragement we all give to each other matters a lot. It will get better!
If you are interested in supporting the Epilepsy Uganda family, whether it be through a donation of masks and sanitizer or with a financial contribution, you are encouraged to contact Gideon directly at https://www.epilepsyuganda.com/contact or on Instagram at @epilepsy_awareness_uganda_.