Phil Gattone’s Neurish
Growing up with epilepsy, I was able to meet a lot of other people who were having seizures and who had epilepsy. A lot of them weren’t nearly as lucky as I was; they didn’t have a support system. I knew I wanted to provide a way for those people to build their own support system, so for the past several years, I’ve been working on an app called Neurish—a play on “neurology” and “nourishment.” It’s a way for people with epilepsy to connect with others and with resources to find the support they need to nourish their own goals and accomplishments.
I think having met people with epilepsy who didn’t have the kind of support system I had was one of the things that really inspired me to make this online community. You see all these different apps out there to connect people, but nothing that really bridged the gap between technology and the epilepsy community. And as I grew up and met more people with epilepsy, I found confirmation that something like this app needed to happen. I already had a passion for computer engineering, so I went to college for that, and once I graduated, I used those skills to start the website, Neurish.me.
Neurish.me took about two years to create, and, although it’s still in beta mode and hasn’t officially launched, you can still access the site. Once you land on the Neurish.me home page, you can click “request access,” then I’ll get an email and send the registration link. Right now, the app is mainly on the web, but it’s mobile responsive, so you can view it on your phone
without issues. We use the GPS function to link you with other people, so no matter where you are, when you load the app on your phone, we connect you with people in your area. Right now, we have almost 100 users. The feedback so far has been fantastic, and we’re using that feedback to continue making adjustments. Some users have said that they’d never met anyone with epilepsy until the site, so they really like how they can connect with other people and not feel alone. I’ve even met a few of the app users in my area.
Ultimately, the goal with Neurish is to connect patients, caregivers, and mentors who have had similar experiences with epilepsy. You can join and create a user profile that includes medical info and personal interests. Once you create a profile, you can look at other profiles for similarities. No matter what kind of seizures you experience, you can find others who are in similar situations. If your daughter has epilepsy, you can find others who have daughters with epilepsy. You can connect, message, add them to your circle, and create a community.
It’s something I’m really proud of, and I hope it can be a resource for you in expanding your own epilepsy community and support network.
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This blog post was submitted by Sunovion Pharmaceuticals Inc., the Founding Sponsor of the June 2019 Epilepsy Blog