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International Epilepsy Day 2019

In honor of International Epilepsy Day 2019, we thought it would be fun to round up a few of our favorite stories that have come to Living Well from around the world.

Epilepsy Blog Relay: Life with Epilepsy in Kenya

This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018.  Follow along! Rich’s Story Symptoms of having Epilepsy were evident but not confirmed by a medical practitioner since 2002. Due to lack of epilepsy information I lived with it until the episodes exceeded. … Read More

Epilepsy Blog Relay: Emily on finding comfort when seizures return

This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Hi Living Well family, I feel like it’s been a while. I’m OK though. A couple of weeks ago, I sadly ended up in hospital after suffering a seizure that involved … Read More

The Guinea Epilepsy Project conducts 300 patient visits free of charge

I recently had the opportunity to speak to Farrah Mateen, MD, PhD, Massachusetts General Hospital/Harvard Medical School, the principal investigator on The Guinea Epilepsy Project. This is the latest in a series of global health projects Dr. Mateen has led, including The Bhutan Epilepsy Project.

International Epilepsy Day 2019

In honor of International Epilepsy Day 2019, we thought it would be fun to round up a few of our favorite stories that have come to Living Well from around the world.     Jessica K. Smith( Founder and CEO )Founder and CEO Jessica brings a unique perspective to this leading epilepsy … Read More

Bhutan Epilepsy Project: Interview with researcher Erica McKenzie

I recently had the opportunity to interview Erica McKenzie, a Bhutan Epilepsy Project researcher, who works with Farrah Mateen MD, PhD.

Epilepsy Blog Relay: The story of the Mahenge Epilepsy Clinic

This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018.  Follow along! Mahenge Epilepsy Clinic It started in the late 1950’s when Dr. Louise Jilek-Aall discovered an unusually high number of outcasts from the Wapogoro tribe in the Mahenge Mountains, Tanzania. These outcasts … Read More

The Bhutan Epilepsy Project

Farrah Mateen, MD, PhD, of Mass General Hospital and Harvard Medical School is taking mobile EEG tech to the Himalayas with the Bhutan Epilepsy Project.

Emily’s Perspective: Emily’s First Time Abroad

I recently traveled abroad with my sister. I was so excited, but as the day got closer, I became worried about all the ‘What ifs’.

She said: Emily and Dan on dating and epilepsy

I met Daniel properly in 2014. He had read a lot of my blogs before we even started talking, so he knew all about my condition. So I never had to break it to him that I live with this unpredictable condition of Epilepsy. Sometimes that can be one of the hardest parts in the beginning of a new relationship.

Epilepsy Blog Relay™: Dr. Mateen Takes Mobile Technology Global for Epilepsy

Dr. Mateen’s Story: If you are interested in innovation in Global Health, you may need to hear about the Bhutan Epilepsy Project.

He said: Emily and Dan on dating and epilepsy

I remember when Emily and I were first dating. My friends would ask me, “Aren’t you worried about what would happen if she has a seizure? Can you deal with that?” I would always find that such a strange question. I wanted to be with Emily for who she was as a person.

Epilepsy Blog Relay: Living Well With Epilepsy is nominated for a Her Abilities Award

Jessica Keenan Smith, founder of Living Well With Epilepsy, has been nominated for a Her Abilities Award, a global award honoring women with disabilities.

 

 

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