You were there to hold my hand on my way to the first of many tests for Epilepsy diagnosis. The one who smiled at me with so much love to ease my fears through the old door window as I lay there all wired up to the EEG. You laughed with me as we sat waiting for hours on end for appointment after appointment in hospital. You have driven hundreds and hundreds of miles to and from the Hospital over 14 years.
You were there to wipe away my tears as I lay in the emergency department confused and scared after my first Tonic-Clonic seizure. You still hold my hand, you still continue to smile with me, you still wipe away my tears and sit with me on uncomfortable chairs whilst I lay there unconscious, whilst I lay there awake and scared waiting for a hospital bed. Not only are you there for me through these hard, hard times. You are here with me on this terrifying journey, hoping to get things under control as much as I hope.
You have sleepless nights when you know how unwell I have been, yet you still smile. You’re also on this amazing journey with me through the good times. You have attended awards with me-cried happy tears with me when I have achieved all I have dreamed of. You’ve taken part in charity runs when you HATE running.
Thank you Mum, for being my biggest fan. I am forever grateful for you.
You really are my biggest supporter in my life, and it means the world to me. Thank you for being a wonderful role model. You are such a strong, kind, independent and caring woman and an even more amazing Mum. If I am even half as amazing of a woman as you are, I will be satisfied. Thank you for setting a wonderful example for me to follow throughout the years. Thank you for providing the best advice. Your words of wisdom are so insightful. I know I’ve left home now, but I love our silly conversations and heart to hearts more than before because of this.
I was only 10, a little girl, when my journey started, and 14 years later you still remain so strong and your strength gives me strength.
Your smile makes me smile. Your laugh is infectious. Your heart is so pure and true. Above all I love that you are my Mother. Not only my Mum, but forever my Friend.
So Dear Mum-thank you.
25 yr old monthly columnist on Living Well with Epilepsy. Full time worker of NHS England.
Emily’s Perspective is a snapshot of what life is like living with Epilepsy. I was diagnosed with Epilepsy at the age of 10.
Based in UK.
I was 20 when i was diagnosed with epilepsy.life hasn’t been easy coz i am in campus.i stay alone coz i became more of a burden to my roommate and she left.i sometimes stay hungry coz i got no psyche.is this what living with epilepsy means?loosing your hair and taking endless epilepsy drugs.i often forget things,like for example i kept my id in my purse and forgot all about it so i thought i had lost it on my way back from school.getting into the school compound without a Student’s id is almost impossible.i applied for another and paid after skipping most of my lectures only to find it a week later.my mom has been an inspiration though.she ‘s been so understanding.thanks to her