This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along!
Today’s post comes from the writer of The World of Gorgeous Grace. Below you will find an excerpt from this piece on living with the constant fear of SUDEP.
I doubt there is a parent out there who doesn’t recall the fear associated with the first year of their baby’s life, due to the heightened risk of cot death. The sense of relief at the first birthday party you are secretly rejoicing in the significantly reduced risk of this terrifying prospect. I recall it vividly with my eldest.
A little known, or publicised, fact is that for those with epilepsy the risk is ongoing. According to the Lullaby Trust, 0.27 babies in 1000 are affected by cot death compared with 1 person in every 1000 people with epilepsy who are affected by SUDEP– Sudden Death in Epilepsy. SUDEP is often unexplained, no reason is found and it is a devastating and complete shock for the families affected.
Read the full post at theworldofgorgeousgrace.com