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Epilepsy Blog Relay: What it really feels like to have epilepsy

This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along!

Alexis’ Story

A day in the life of an epileptic social butterfly with social anxiety. Hmm where do i start…. My day can start off pretty rocky just trying to remember to take my meds. Then what to wear, heck what was i just thinking about 5 minutes ago. I’ve noticed that some of my teeth have relocated in different spots in my mouth on while others have simply left the party without even letting me know. My headaches can be banging like hip hop and R&B. I’ve grown too love my lazy eye and crooked smile that comes with the territory.

Focusing can can be overwhelming. Sometimes I’m all over the place then other days I’m all in. Going from super charged, too cranked out, helpless, super happy, depressed, auras off can make or break you.

Hell-a-coaster days

I find myself trying to make the best of my hell-a-coaster days because it takes almost everything in me to function at full potential these days. It’s like my mind and body are working on two different universes and working against each other. My head feels like a 100 rounds of fireworks going off at the same time, while my body feels like jelly without any control over my limbs. My body can sometimes be so sore you would have thought i bench pressed a Buick. I’ve even picked up vampire sleeping hours, wired for sound at 3am and needing mandatory power naps daily.

Then there’s the whole thing where you don’t look sick so what is wrong with you? That’s when I sit people down and describe to them what it feels like to have epilepsy. My mood goes from super emotional to no emotion, being confused, mouth sore, chewed up tongue, bruising, headaches, body aches, mood swings all comes along with epilepsy.

I make it my business to put my best foot forward and grab epilepsy by the head and tackle it to the floor daily. I refuse to allow epilepsy to take me out #strong proud purple survivor#


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