This post is part of the Epilepsy Blog Relay™ which will run from November 1 to November 30, 2017. Follow along!
Cue Slim Shady: Guess who’s back, back again…
If you guessed “Leila,” you’re right! It’s been a few months since I shared a piece on here. I’ve been busy with work, wedding planning (then the wedding!!), and managing my stress level to prevent any episodes from occurring. That last part brings me to my next point.
If you guessed “seizures,” you are also right. After more than a decade without a tonic clonic seizure, one broke through my medications and occurred in October. Thankfully, my sweet, new husband was there and took care of me in the perfect way. He followed all the precautions & did everything right…I told him he should start training others! 🙂 There was no clear trigger and we’re all kind of puzzled about it. We hoped it was a fluke and that life could go on as normal. You can probably guess that life has not gone on as normal.
The week after my seizure was filled with questions and constant micromanagement of my feelings. After continued brain issues, my neurologist determined that my medication was no longer effective at stopping seizures and I needed to switch meds. We racked our brains trying to figure out a trigger. Did the stress of work and wedding planning finally come to a point? I’ve been having daily migraines for a year now…was my brain trying to tell me that the meds weren’t working all that time? Were we (me, my health team, family, etc) too quick to explain away my symptoms by stress? Or do I have a new trigger, one that we can’t identify by just 1 seizure? There are so many questions. At the end of the day, the only thing that matters is that my medications are no longer working and I need a change.
I’m back on the journey of endless questions and not enough answers. I had an MRI a few weeks ago which did not yield any immediate answers. I will be having an EEG in December that will hopefully give us some clues. Until then, I’m switching medications, noting every odd feeling down (hey, at least I’m completing a New Year’s resolution), and praying that advances in technology will help solve this puzzle. I hope you’ll stick with me as my epilepsy journey gets a little more bumpy. I’ll be keeping you all updated.
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Leila shares stories on stigma and epilepsy based on her experiences and what she hears from others. She was diagnosed with Epilepsy at age 8 and is based in Pennsylvania.