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Epilepsy Blog Relay™: Update on epilepsy awareness initiatives

This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30, 2016. Follow along!

An update from Jessica

These days the Living Well With Epilepsy team is busy working on new epilepsy awareness initiatives. In October, the IAMSUDEPAWARE campaign skyrocketed beyond our expectations. Recently Emily Donoghue, a Living Well writer, presented at an Eisai UK event. Abby Gustus-Alford, a Living Well writer, released her new book, Seize the Day. This month we are busy with the Epilepsy Blog Relay which will end with the #LivingWellChat. And in December, I will head to the American Epilepsy Society meeting in Houston, TX.

Learn more about SUDEP

Last month Living Well With Epilepsy worked with SUDEP Aware and Lundbeck on an exciting new campaign to increase awareness of Sudden Unexpected Death in Epilepsy (SUDEP). The #IAMSUDEPAWARE social media campaign was extremely successful in raising awareness. The effort kicked off September 23 and ran through October 23. As a result, more than a half a million people learned about SUDEP.

Just in case you missed it, here is a bit of info on SUDEP. Today, approximately 65 Million people around the world are living with epilepsy and each year, an estimated 1 in 1000 people with epilepsy die from Sudden Unexpected Death in Epilepsy (SUDEP). That’s approximately 65,000 people around the world who will die each year as a result of SUDEP. Download brochures on SUDEP in English Spanish and French from SUDEP Aware.

Don’t miss the #LivingWellChat

Join us for a fun LIVE event on November 30, at 7pm ET as a way to celebrate the end of another great Epilepsy Blog Relay™. We use the hashtag #LivingWellChat to filter out all the other social noise on the platform and the chat lasts about 1 hour.

How does the chat work?

Lots of Twitter chats have a formal structure, only allowing a few minutes per question, but #LivingWellChat is a bit more open. The format of #LivingWellChat is very simple: We start with a general topic, and the conversation flows from there. We encourage spontaneous discussion with tons of Q&A.

Participating in #LivingWellChat

1. Go to http://twubs.com/livingwellchat OR http://tweetchat.com/room/livingwellchat
2. Log in using your twitter account **IMPORTANT**
3. Set the chat speed as fast or slow as you prefer
4. The Twitter feed will pop up with all the #LivingWellChat tweets.
5. Be sure to introduce yourself when you come on the chat

I really like Twubs, but some people prefer Tweetchat. Others prefer to participate within Twitter. It’s up to you!

If you don’t have a twitter account

You won’t be able to chime in with your own comments but here are two ways to follow along:

Option 1: Go to the Living Well With Epilepsy Facebook page and click on the Twitter tab at https://www.facebook.com/livingwellwithepilepsy/app/294627540601598/

Option 2: Go to https://livingwellwithepilepsy.com and watch the chat in the footer of the home page.

Can anyone join in the conversation?

Yes, please join in the chat. Whether you have been living with epilepsy for decades, or if you are newly diagnosed, you and your loved ones will find something of interest on the next #LivingWellChat.

medikidz-eplain-lgs_front-coverNEXT UP: Be sure to check out the post tomorrow on MediKidz on LivingWellWithEpilepsy, provided by Eisai, the Epilepsy Blog Relay Champion Sponsor. For the full schedule of bloggers visit the Participants gallery.

Follow Jessica K. Smith:


Founder and CEO Jessica brings a unique perspective to this leading epilepsy blog as she was diagnosed with epilepsy as a teen. She also brings 20+ years experience in marketing.

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