Many people are unaware they are at risk of SUDEP or Sudden Unexpected Death in Epilepsy. That’s why SUDEP Aware, Living Well With Epilepsy and Lundbeck have joined forces to shine a spotlight on SUDEP Awareness Day, October 23.
In fact, each year an estimated 1 in 1000 people with epilepsy die from SUDEP. That’s approximately 65,000 people around the world who will die each year as a result of SUDEP.
You can make a difference
The #IAMSUDEPAWARE social media campaign, will kick off September 23 and will run through October 23. This is your opportunity to tell the world “#IAMSUDEPAWARE”. Every time the hashtag is Tweeted or Retweeted, Lundbeck will donate $1 to SUDEP Aware — up to $5,000! Donations will be made to SUDEP Aware, a Canadian charity founded in 2008, dedicated to raising SUDEP Awareness.
How to participate
There are several ways you can participate.
1| Participate in the #IAMSUDEPAWARE Thunderclap
Sign up for the IAMSUDEPAWARE Thunderclap. This platform will, on October 23, simultaneously blast one message on the Twitter, Facebook or Tumblr accounts of all those who participate. You can learn more about what a Thunderclap is and how to participate here.
2| Send your own tweet using the #IAMSUDEPAWARE hashtag
If you prefer to send your own tweet between September 23 and October 23 just remember to include the hashtag, #IAMSUDEPAWARE.
Here are a few suggestions:
> #IAMSUDEPAWARE are you? Did you know SUDEP stands for Sudden Unexpected Death in Epilepsy? Don’t miss SUDEP Awareness Day on October 23.
> #IAMSUDEPAWARE Don’t miss SUDEP Awareness Day on October 23.
> #IAMSUDEPAWARE are you? Send out a caring thought to those who have lost their loved ones on SUDEP Awareness Day on October 23.
> Did you know SUDEP stands for Sudden Unexpected Death in Epilepsy? Don’t miss SUDEP Awareness Day on October 23. #IAMSUDEPAWARE
3| Donate directly to SUDEP Aware
Participants can also contribute directly to the SUDEPAware.Donate to SUDEP Aware
Watch here for more updates!
Founder and CEO
Jessica brings a unique perspective to this leading epilepsy blog as she was diagnosed with epilepsy as a teen. She also brings 20+ years experience in marketing.