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My Four Words reminds us we are not alone

On March 31, an estimated 5,000 people affected by epilepsy came together on the National Mall in Washington, DC, to participate in the Epilepsy Foundation’s Sixth National Walk for Epilepsy.

At the walk, UCB, debuted the “My Four Words” project, challenging attendees to express their personal journey with epilepsy in just four words. The “My Four Words” project generated buzz and spurred conversation about a condition that is often misunderstood. Caregivers, friends and family members also contributed their four words to the project.

See the photos
To view more photos of participants creating their My Four Words posters visit the gallery here:

The hundreds of people living with epilepsy who shared their four words represented the nearly 2.2 million people in the U.S. living with this chronic neurological disorder. Their words communicated challenges and triumphs, expressed the importance of raising awareness, honored loved ones and inspired those living with epilepsy to continue striving for seizure control.

Tony Coelho’s Words
“The ‘My Four Words’ project was a great way to ignite dialogue about a condition that is too often silenced,” said Former Rep. Tony Coelho (D-Calif.), interim CEO of the Epilepsy Foundation.  “The National Walk for Epilepsy brought people together and inspired attendees, and the nation, to talk about epilepsy and the importance of seizure control.”
Epilepsy Foundation Survey
If you participated in the walk this year, please complete the Epilepsy Foundation’s survey:

What are your Four Words?
Personally, I can think of a few:
We Need a Cure
Living Well With Epilepsy
and I do love the one in the picture above You Are Not Alone

But I want to hear your four. Comment below so we can share them!

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Founder and CEO Jessica brings a unique perspective to this leading epilepsy blog as she was diagnosed with epilepsy as a teen. She also brings 20+ years experience in marketing.

4 Responses

  1. kerrie doyle
    | Reply

    Wanting a good day

    • Jessica Keenan Smith
      | Reply

      That's a good one and brings us back to “you are not alone” because I know there are other people out there who feel the same

  2. Jamie Campbell
    | Reply

    Awesome. thanks for sharing. 🙂

  3. Jessica
    | Reply

    Thanks for your comment Jamie.

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