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Living Well With Epilepsy is dedicating the month of June to Epilepsy Stigma Awareness. Your overwhelming responses on Facebook and Twitter have prompted us to dedicate a full month to raising awareness on epilepsy related stigma.
Epilepsy Stigma Awareness
Many of you responded that you feel isolated and angry. Yet there are 65 MILLION people living with epilepsy and 200 THOUSAND new cases each year in the US alone. There is no reason we should have to be isolated. And maybe it’s time we use the strength of that anger toward support for one another.
June is also a good halfway point in the year to address an issue that affects all of us. Purple Day was months ago, and November feels like a long way off. It’s time for us to shake things up.
What you can expect
- Each week throughout June, we will post an article on epilepsy related stigma.
- Personal stories on dealing epilepsy stigma will be featured
- Tips on how to deal with stigma
This money will help Living Well With Epilepsy continue its mission. We are dedicated to supporting people with epilepsy, increasing epilepsy awareness and benefiting organizations that further epilepsy research. You have clearly stated that stigma is a widespread problem. So, we would like to spend more time focused on fighting stigma but we can only do that with your help.
How you participate
You don’t have to give $500 ($1 is enough) to participate. It’s easy, and if it’s not let us know at firstname.lastname@example.org. And hopefully, we can have some fun and share some stories. And maybe other groups will make June Epilepsy Stigma Awareness month too!
1. You can donate toward the campaign (could be as little as $1). Each post will give you the opportunity to donate right there.
2. Share your story about epilepsy stigma – and don’t forget to include a photo.
What you get
1. Everyone who gives (could be as little as $1) will get an excerpt of our forthcoming e-book.
2. All donors (unless they don’t want to) will be recognized in the donor honor roll on the sidebar.
3. The satisfaction of knowing you made a difference in the name of the millions of people with epilepsy who are fighting for their lives.
Oh, and spread the word. Share posts on facebook, tweet and talk up Epilepsy Stigma Awareness Month.
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As founder of Living Well With Epilepsy, Jessica brings a unique perspective to this leading epilepsy blog. She was diagnosed with epilepsy as a teen, after having several grand mal seizures. She also has 20+ years experience in marketing. You can find her on Twitter, Facebook, and Google+. Jessica also regularly speaks on the topics of Navigating Social Media and Epilepsy Awareness.
Latest posts by Jessica Keenan Smith (see all)
- Anonymous Story: It’s the not knowing that scares me - December 15, 2013
- 2014 is the year of Purple: Pantone’s Radiant Orchid - December 7, 2013
- Becky’s Story: Seizure Control with Diet - November 26, 2013
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